Indiana University
Center for Survey Research

FSSA Caregiver Study

Thank you for following up on this study about caregiving in Indiana!

On behalf of Indiana’s Family and Social Services Administration (FSSA), we at the Center for Survey Research at Indiana University are conducting this study of Indiana residents who have assisted (unpaid) someone age 55 or older at least once a month in the last 12 months. You may have received an email message, seen an online posting, or had an organization reach out to you to invite you to participate in the survey. It can be completed online or by telephone.

To see if you qualify Start Here

To learn more about the study, please see the commonly asked questions below.

Commonly Asked Questions

  • What is the FSSA Caregiver Survey?

    The FSSA Caregiver Survey is a survey to help FSSA learn more about caregiver needs in order to provide better assistance and information to Indiana caregivers of adults 55 years of age or older. Knowing how to support current and future caregivers and helping to ensure that they have the resources to support their own health and well-being are critical priorities for FSSA. The data from this survey will help FSSA meet the needs of our state’s growing caregiver population.

  • Who is sponsoring the FSSA Caregiver Survey? Who is conducting it?

    The Indiana Family and Social Services Administration (FSSA) is sponsoring the survey. You can find out more about FSSA at their website.

    FSSA has asked the Indiana University Center for Survey Research (CSR) to conduct the survey. Once you have provided a phone number, a professional interviewer from CSR will call you and find out if you are eligible for the study. Or, if you prefer, you may answer the questions yourself using an online survey. You can get started here.

  • How was I chosen?

    Your address may have been randomly picked for this study (think of it like a lottery drawing from all households in Indiana) or you may have heard about the study from an organization like AARP, the Indiana Minority Health Coalition, or Senior Link. These organizations are assisting us in finding eligible caregivers for our study.

    We do not know if you or anyone else in your household provide care for a loved one, friend, or neighbor. When your interviewer calls, they will find out if there is someone in your household who is eligible to be interviewed for our study.

  • Why should I take part? Why can’t you talk to someone else?

    We cannot interview all Hoosiers who provide care or support to someone 55 years of age or older — that would take a very long time and a lot of resources. So, we are trying to talk to about 400 people across the state who represent their neighbors and communities and will help us get a good picture of the needs of caregivers in Indiana.

  • Is this study just for people who provide several hours of care each week to a spouse or parent?

    No. We would like to include any adult in your household who has assisted (unpaid) anyone age 55 or older at least once a month for the last 12 months with any of the following:

    • Companionship or checking in by phone or in person, even just talking with them about their life or participating in leisure activities with them
    • Household tasks like cooking, cleaning, shopping, or yardwork
    • Personal care like dressing or grooming
    • Transportation
    • Managing bills, insurance, legal matters, or responding to medical or other emergencies
  • Will my answers be kept private?

    Yes. All information you provide will be kept confidential. Your answers will be combined with answers from other people and only reported as percentages or averages.

  • Do I have to answer the questions?

    Your help with this study is voluntary.

    Most people find the questions interesting and an important opportunity to share their experiences. Your voice will represent your community.

    You may choose to skip any question you do not wish to answer, and you can stop the survey at any time.

  • Can I complete the survey online? How long will it take?

    You can complete the survey online or with one of our professional telephone interviewers. The telephone interview lasts about 25 minutes. We will do the interview at a time that works best for you.

    The online survey can be completed at your convenience and usually takes about 20 minutes.

  • Can I complete the survey in Spanish?

    Yes. Please contact the Center for Survey Research at Indiana University at 800-258-7691 or by email at to request a Spanish-speaking interviewer.

  • Who is the Indiana University Center for Survey Research?

    The Center for Survey Research (CSR) is a part of Indiana University in Bloomington, Indiana. The CSR was established in the early 1980’s and conducts 35-50+ projects each year providing high-quality research data to state agencies, non-profit organizations, and researchers across a wide range of fields. CSR telephone interviewers complete rigorous training and are carefully monitored to ensure that they are conducting interviews accurately and in a professional manner at all times.

  • Where do I get more information?

    To see if you qualify, please begin here.

    If you have questions about whether you might be eligible for the study or about scheduling the interview, or for other questions regarding participation in the survey:

    • Contact the Center for Survey Research at Indiana University at 800-258-7691 or by email at

    For information about this research or to verify the legitimacy of the study:

    • Call the Indiana Family and Social Services Administration Division of Aging at 888-673-0002